The Influence of Palliative Care Guidance in Physical Aspects in Families on Level of Independence Post-Stroke Patients' Families in Garut Regency
DOI:
10.29303/jppipa.v9i11.5660Published:
2023-11-25Downloads
Abstract
Physical complications due to stroke result in a decrease in the patient's level of independence to meet their daily needs, so it is necessary to carry out rehabilitation measures to increase independence through providing palliative care guidance at home. The aim of this research is to determine effect of palliative care guidance in physical aspect on the level of independence of families of post-stroke patients in Garut Regency. This research method is quasi experimental with one group pre-test and post-test design. The research sample was families who had family members with stroke infarction, 20 respondents in intervention group, sampling technique used purposive sampling. Data collection used standard nursing operational procedures from PPNI and family independence level instruments. Data analysis used Wilcoxon. The results of the research before being given palliative care guidance in the physical aspect, most families (55%) were at level 2 of independence and after providing palliative care guidance most of the families (55%) were at level 3 of independence. There was an influence of palliative care guidance in the physical aspect on level of independence of post-stroke patients' families with p value of 0.00. Providing information and skills through palliative care guidance can increase family understanding and independence in caring for family members who have experienced a stroke, so that palliative services can be used as one of the health center's work programs to improve quality of life for stroke infarction patients.
Keywords:
Infarction stroke Level of independence Palliative careReferences
Badaru, U. M., Ogwumike, O. O., & Adeniyi, A. F. (2015). Quality of Life of Nigerian Stroke Survivors and Its Determinants. African Journal of Biomedical Research, 18(1), 1-5. Retrieved from https://www.ajol.info/index.php/ajbr/issue/view/12447
Brewer, L., Horgan, F., Hickey, A., & Williams, D. (2013). Stroke Rehabilitation: Recent Advances and Future Therapies. Qjm, 106(1), 11–25. https://doi.org/10.1093/qjmed/hcs174
Campbell, M. (2014). Nurse to Nurse (Perawatan Paliatif) (1st ed.). Jakarta: Salemba Medika. Retrieved from https://batupusaka.bantenprov.go.id/koleksi/monograf/perawatan-intensif/MjgxNDI-nurse-to-nurse-perawatan-paliatif-margaret-l-campbell?perpus=aHR0cDovL29wYWMuYmFudGVucHJvdi5nby5pZDo4MTIzL2lubGlzbGl0ZTMv
Chapman, B., & Bogle, V. (2014). Adherence to Medication and Self-Management in Stroke Patients. British Journal of Nursing, 23(3), 158-166. https://doi.org/10.12968/bjon.2014.23.3.158
Colby, W. H., Dahlin, C., Lantos, J., Carney, J., & Christopher, M. (2010). The National Consensus Project for Quality Palliative Care Clinical Practice Guidelines Domain 8: Ethical and Legal Aspects of Care. HEC Forum, 22(2), 117-131. https://doi.org/10.1007/s10730-010-9128-3
Curie, M. (2019). Living with A Terminal Illness (3rd ed., pp. 61–69). Retrieved from https://www.mariecurie.org.uk/globalassets/media/documents/how-we-can-help/living-with-a-terminal-illness/living-with-a-terminal-ilness-april-2019.pdf
Firawati, F., Nurul, N., & Jannah, N. (2021). Pengaruh Pendidikan Kesehatan dan Dukungan Keluarga terhadap Activity of Daily Living (ADL) Penderita Stroke di RSUD H. Padjonga Dg. Ngalle Kabupaten Takalar. Jurnal Kesehatan, 2(4). Retrieved from https://ojs.stikfamika.ac.id/index.php/jurkep/article/view/14/11
Friedman, M. M., Bowden, V. R., & Jones, E. G. (2010). Buku Ajar Keperawatan Keluarga: Riset, Teori, dan Praktik. Jakarta: EGC. Retrieved from http://ucs.sulsellib.net//index.php?p=show_detail&id=25907
Frontera, J. A., Curtis, J. R., Nelson, J. E., Campbell, M., Gabriel, M., Mosenthal, A. C., Mulkerin, C., Puntillo, K. A., Ray, D. E., Bassett, R., Boss, R. D., Lustbader, D. R., Brasel, K. J., Weiss, S. P., & Weissman, D. E. (2015). Improving Palliative Care in the ICU Project Advisory Board. Integrating Palliative Care into the Care of Neurocritically Ill Patients: A Report from the Improving Palliative Care in the ICU Project Advisory Board and the Center to Advance Palliative Care. Crit Care Med, 43(9), 1964-1977. https://doi.org/10.1097/CCM.0000000000001131
Holloway, R. G., Arnold, R. M., Creutzfeldt, C. J., Lewis, E. F., Lutz, B. J., McCann, R. M., Rabinstein, A. A., Saposnik, G., Sheth, K. N., Zahuranec, D. B., Zipfel, G. J., & Zorowitz, R. D. (2014). American Heart Association Stroke Council, Council on Cardiovascular and Stroke Nursing, and Council on Clinical Cardiology. Palliative and End-of-Life Care in Stroke: A Statement for Healthcare Professionals from the American Heart Association/American Stroke Association. Stroke, 45(6), 1887-1916. https://doi.org/10.1161/STR.0000000000000015
Hong, I., Aaron, S. E., Li, C. Y., & Simpson, A. N. (2017). Physical Activity and the Risk of Depression in Community-Dwelling Korean Adults with A History of Stroke. Phys Ther, 97, 105-113. https://doi.org/10.1161/STROKEAHA.114.005661
Hu, M. H., Hsu, S. S., Yip, P. K., Jeng, J. S., & Wang, Y. H. (2010). Early and Intensive Rehabilitation Predicts Good Functional Outcomes in Patients Admitted to the Stroke Intensive Care Unit. Disability and Rehabilitation, 32(15), 1251-1259. https://doi.org/10.3109/09638280903464448
Ibrahim, I., Danial, D., & Prihatiningsih, D. (2021). Pengaruh Perawatan Paliatif terhadap Kualitas Hidup pada Pasien Kanker. Literatur Review. In digilib.unisayogya.ac.id. Retrieved from http://digilib.unisayogya.ac.id/6047/1/1710201139_S1IlmuKeperawatan_DanialIbrahim-DanialIbrahim.pdf
Kim, J. S. (2016). Post-Stroke Mood and Emotional Disturbances: Pharmacological Therapy Based on Mechanisms. Journal of Stroke, 18(3), 244-255. https://doi.org/10.5853/jos.2016.01144
Langhorne, P., de Villiers, L., & Pandian, J. D. (2012). Applicability of Stroke-Unit Care to Low-Income and Middle-Income Countries. Lancet Neurol, 11(4), 341-348. https://doi.org/10.1016/S1474-4422(12)70024-8
Leuna, C. F. M., & Rantung, J. (2019). Studi Fenomenologi Pengalaman Perawat dalam Memberikan Asuhan Keperawatan Paliatif pada Pasien dengan Penyakit Terminal di Ruang ICU Rumah Sakit Advent Bandung. Jurnal Skolastik Keperawatan, 4(2), 78–103. https://doi.org/10.35974/jsk.v4i2.718
Liu, N., Cadilhac, D. A., Andrew, N. E., Zeng, L., Li, Z., Li, J., Li, Y., Yu, X., Mi, B., Li, Z., Xu, H., Chen, Y., Wang, J., Yao, W., Li, K., Yan, F., & Wang, J. (2014). Randomized Controlled Trial of Early Rehabilitation after Intracerebral Hemorrhage Stroke: Difference in Outcomes Within 6 Months of Stroke. Stroke, 45(12), 3502-3507. https://doi.org/10.1161/STROKEAHA.114.005661
Mahmuddin, M., Lestari, D. R., & Rizani, I. (2020). Hubungan Lama Menjalani Kemoterapi dengan Kualitas Hidup Penderita Kanker Payudara di RSUD Ulin Banjarmasin. Dinamika Kesehatan Jurnal Kebidanan dan Keperawatan, 10(1), 253–265. https://doi.org/10.33859/dksm.v10i1.455
Mani, R. K., Amin, P., Chawla, R., Divatia, J. V., Kapadia, F., Khilnani, P., Myatra, S. N., Prayag, S., Rajagopalan, R., Todi, S. K., & Uttam, R. (2012). Guidelines for End-of-Life and Palliative Care in Indian Intensive Care Units' ISCCM Consensus Ethical Position Statement. Indian J Crit Care Med, 16(3), 166-181. https://doi.org/10.4103/0972-5229.102112
Mazzocato, C., Michel-Nemitz, J., Anwar, D., & Michel, P. (2010). The Last Days of Dying Stroke Patients Referred to A Palliative Care Consult Team in An Acute Hospital. Eur J Neurol, 17(1), 73-77. https://doi.org/10.1111/j.1468-1331.2009.02744.x
Muntamah, U. (2020). Perawatan Paliatif HIVAIDS. In Yuma Pustaka (1st ed., Vol. 5, Issue 3). Surakarta: Yuma Pustaka. Retrieved from https://repository.itspku.ac.id/226/1/Perawatan Paliatif HIV AIDS Cetak.pdf
Ntlholang, O., Walsh, S., Bradley, D., & Harbison, J. (2016). Identifying Palliative Care Issues in Inpatients Dying Following Stroke. Ir J Med Sci, 185(3), 741-744. https://doi.org/10.1007/s11845-015-1290-9
Salins, N. (2014). Time for Change: Integrating Palliative Medicine to Mainstream Medicine. Indian J Palliat Care, 20(2), 97-98. https://doi.org/10.4103/0973-1075.132618
Sarti, C., Rastenyte, D., Cepaitis, Z., & Tuomilehto, J. (2000). International Trends in Mortality from Stroke, 1968 to 1994. Stroke, 31(7), 1588-1601. https://doi.org/10.1161/01.str.31.7.1588
Steele, S., Rose, R., & Davies, B. (2016). Supporting Families in Palliative Care. In C. Nessa (Ed.), Hospice & Palliative Nurses Association. Palliative Nursing Manuals: Social Aspects of Care (6th ed., pp. 51–55). Oxford University Press. Retrieved from https://books.google.co.id/books?hl=id&lr=&id=GnLNCgAAQBAJ&oi=fnd&pg=PT61&dq=Steele+%26+Davies,+2015+palliative+care&ots=C1dp-Qi_Iv&sig=yssNxdwYt3m1a2mJGiNyaJEWrhA&redir_esc=y#v=onepage&q&f=true
Sukmadinata, N. S. (2013). Metode Penelitian Pendidikan (1st ed.). Bandung: PT Remaja Rosda Karya.
van Almenkerk, S., Depla, M. F., Smalbrugge, M., Eefsting, J. A., & Hertogh, C. M. (2015). Pain among Institutionalized Stroke Patients and Its Relation to Emotional Distress and Social Engagement. Int J Geriatr Psychiatry, 30(10), 1023-1031. https://doi.org/10.1002/gps.4256
Volz, M., Möbus, J., Letsch, C., & Werheid, K. (2016). The Influence of Early Depressive Symptoms, Social Support and Decreasing Self Efficacy on Depression 6 Months Post-Stroke. J Affect Disord, 206, 252-255. https://doi.org/10.1016/j.jad.2016.07.041
Widowati, D. E. R., Indarwati, R., & Fauziningtyas, R. (2020). Determinan Faktor yang Berhubungan dengan Pengetahuan Perawat dalam Perawatan Paliatif. Berkala Ilmiah Mahasiswa Ilmu Keperawatan Indonesia, 8(1), 7–15. https://doi.org/10.53345/bimiki.v8i1.121
Zaenal, Z., & Mustamin, R. (2022). Pengaruh Pendidikan Kesehatan dalam Pelaksanaan Home Care terhadap Kemandirian Activity Daily Living (ADL) Penderita Stroke di Watampone. Jurnal Ilmiah Keperawatan dan Kebidanan Holistic Care, 05(02), 22–29. Retrieved from https://www.jurnalgrahaedukasi.org/index.php/JIKKHC/article/view/218/270
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